| ORGAN AND TISSUE DONATION | ||
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www.unyts.org - Upstate New York Transplant Services, Inc. (UNYTS) coordinates the donation process in the eight counties of Western New York by talking with families to inform them of their donation options; coordinating the organ and tissue recovery process with hospitals and funeral homes; allocating organs and tissues for transplant; and providing follow-up information to donor families.
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www.shareyourlife.org - Find out what you need to do to become a donor and ensure your wishes will be carried out. Find answers to commonly asked questions about living donation. Request a donor card. Send an e-postcard. | |
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www.organdonor.gov - Download, print, sign and carry a donor card. Say Yes to donation on your driver’s license. Sign up with your State’s donor registry. Discuss your decision with your family. They may be asked to give consent. | |
| KIDNEY DISEASE/KIDNEY PATIENTS | ||
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www.aakp.org - American Association of Kidney Patients (AAKP) exists to serve the needs, interests and welfare of all kidney patients and their families. Its mission is to improve the lives of fellow kidney patients and their families by helping them to deal with the physical, emotional and social impact of kidney disease. | |
| TRANSPLANT | ||
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www.tsgwny.org - Transplant Support Group of Western New York provides support to patients, their families and caregivers. This group continues to be run by an all-volunteer group of transplant patients and their families. All funds raised are spent in Western New York for patient support and education. | |
| www.unos.org - United Network for Organ Sharing coordinates United States organ transplant activities. This site has extensive information, including data with national, regional, state, and transplant center specific reports. | ||
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www.transplantliving.org - Transplant Living is a project of the United Network for Organ Sharing (UNOS), a nonprofit organization that maintains the national Organ Procurement and Transplantation Network (OPTN). | |
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www.ustransplant.org - Scientific registry of transplant recipients (SRTR) publishes updated reports every six months on activities at each transplant center and organ procurement organization in the United States. Reports include statistics about organ donation and recovery, waitlist activity such as transplant rate, post-transplant outcomes and graft and patient survival. | |
| LIVING DONATION | ||
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www.paireddonation.org - Kidney paired donation matches one incompatible donor/recipient pair to another pair with a complementary incompatibility. In other words, the two pairs swap kidneys. In New York State Kaleida Health is a participating partner. Call Buffalo General Hospital to find out more information. | |
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www.matchingdonors.com - Original website matching donors to recipients on a National Level. Fee charged to post a profile, however, will waive the fee if need-based. | |
| www.lodap.com - Living Organ Donor Advocate Program answers all questions regarding being a living donor. LODAP believes every Living Organ Donor should be supported in their physical, emotional, psychological, financial and spiritual needs. | ||
| www.livingdonorsonline.org - We seek to be the preeminent online community for living donors, potential donors, their families, and medical professionals. The goals are to educate, support, and advocate for living organ donors. | ||
| FINANCIAL ASSISTANCE | ||
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www.akfinc.org - The American Kidney Fund is our nation's #1 source of direct financial assistance to kidney patients, and is a leader in providing education to those with and at risk for kidney disease. | |
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www.transplants.org – Organ and bone marrow transplant patients nationwide turn to National Foundation for Transplants when they need help in paying for transplant costs not covered by insurance. NFT provides support, advocacy and financial assistance to transplant candidates and recipients nationwide. | |
| MISCELLANEOUS | ||
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www.carepages.com - Offers a free service that creates personalized home pages to help patients and their support network communicate. Create your page then give your family and friends your personal password so you can share news and receive support and encouragement. | |
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We have compiled this list of links to websites that will be helpful to those who are looking for more information about kidney disease and transplants. |
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© Copyright 2008 National Kidney Foundation of WNY