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We have compiled this list of links to websites that will be helpful to those who are looking for more information about kidney disease and transplants.

 
ORGAN AND TISSUE DONATION
link to Upstate New York Transplant Center
www.unyts.org - Upstate New York Transplant Services, Inc. (UNYTS) coordinates the donation process in the eight counties of Western New York by talking with families to inform them of their donation options; coordinating the organ and tissue recovery process with hospitals and funeral homes; allocating organs and tissues for transplant; and providing follow-up information to donor families.

www.nydonateslife.org 

Join your friends and family who have already signed up to donate life.

Mission - We are dedicated to increasing organ and tissue donation throughout New York State by enhancing awareness and emphasizing the needs and benefits of donation and transplantation.

Why should you consider becoming an organ and tissue donor? Your decision to be an organ and tissue donor may save or enhance the lives of up to 50 people.

Facts About Donation - People of all ages and medical histories should consider themselves potential donors. Although the medical condition of the donor at the time of death will determine what organs and tissue can be donated, organ donation is an act of caring and love supported by all major religions in the U.S.


link to ShareYour Life.org

www.shareyourlife.org - Find out what you need to do to become a donor and ensure your wishes will be carried out. Find answers to commonly asked questions about living donation. Request a donor card. Send an e-postcard.

 


Say Yes to donation on your driver’s license
www.organdonor.gov - Download, print, sign and carry a donor card. Say Yes to donation on your driver’s license. Sign up with your State’s donor registry. Discuss your decision with your family. They may be asked to give consent.
KIDNEY DISEASE/KIDNEY PATIENTS
NKF of Western New York, Inc.

www.kidney.org

Who We Are - The National Kidney Foundation, Inc., a major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.


link to American Association of Kidney Patients
www.aakp.org - American Association of Kidney Patients (AAKP) exists to serve the needs, interests and welfare of all kidney patients and their families. Its mission is to improve the lives of fellow kidney patients and their families by helping them to deal with the physical, emotional and social impact of kidney disease.
ustransplant
www.ustransplant.org - The Scientific Registry of Transplant Recipients is a national database of statistics related to solid organ transplantation - kidney, liver, pancreas, intestine, heart, and lung. The registry covers the full range of transplant activity, from organ donation and waiting list candidates to transplant recipients and survival statistics. Its purpose: to support the development of sound policy, to encourage research on issues of importance to the transplant community, and to facilitate responsible analysis of transplant programs and OPOs
TRANSPLANT
http://bgh.kaleidahealth.org/images/bgh_head.gif
http://bgh.kaleidahealth.org - Buffalo General Hospital is proud to be part of the Kaleida Health system and a major teaching affiliate of the University at Buffalo School of Medicine and Biomedical Sciences. The best outcomes in Upstate New York for kidney and pancreas survival rates are from our Multi-Organ Transplant Center.
ECMC
www.ecmc.edu - Being a patient at ECMC means having the extensive resources of our state-of-the-art facility, as well as internationally renowned experts in managing end-stage renal disease (ESRD), available for your care.
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www.ihatedialysis.com - Welcome to a site for patients by patients. We are a community that is very supportive of each other and we help new patients and veterans of this disease cope with the daily struggles of living with kidney disease. If you are affected by kidney disease you are welcome here.
www.unos.org
www.unos.org - United Network for Organ Sharing coordinates United States organ transplant activities. This site has extensive information, including data with national, regional, state, and transplant center specific reports.
link to Transplant Living
www.transplantliving.org - Transplant Living is a project of the United Network for Organ Sharing (UNOS), a nonprofit organization that maintains the national Organ Procurement and Transplantation Network (OPTN).
link to USTransplant.org
www.ustransplant.org - Scientific registry of transplant recipients (SRTR) publishes updated reports every six months on activities at each transplant center and organ procurement organization in the United States. Reports include statistics about organ donation and recovery, waitlist activity such as transplant rate, post-transplant outcomes and graft and patient survival.
LIVING DONATION
link to PairedDonation.org
www.paireddonation.org - Kidney paired donation matches one incompatible donor/recipient pair to another pair with a complementary incompatibility. In other words, the two pairs swap kidneys. In New York State Kaleida Health is a participating partner. Call Buffalo General Hospital to find out more information.
ling to MatchingDonors.com
www.matchingdonors.com - Original website matching donors to recipients on a National Level. Fee charged to post a profile, however, will waive the fee if need-based.

LODAP

www.lodap.com - Living Organ Donor Advocate Program answers all questions regarding being a living donor. LODAP believes every Living Organ Donor should be supported in their physical, emotional, psychological, financial and spiritual needs.

Living Donors
Online!

www.livingdonorsonline.org - We seek to be the preeminent online community for living donors, potential donors, their families, and medical professionals. The goals are to educate, support, and advocate for living organ donors.
FINANCIAL ASSISTANCE
Link to American  Kidney Fund
www.akfinc.org - The American Kidney Fund is our nation's #1 source of direct financial assistance to kidney patients, and is a leader in providing education to those with and at risk for kidney disease.

National Living Donor Assistance

Center

www.livingdonorassistance.org

Living Donor Assistance Program -Providing financial assistance to those who want to donate an organ, priority is given to individuals not otherwise able to afford the travel and subsistence expenses associated with living organ donation.

For Donors - Learn if you are eligible for reimbursement of travel and subsistence expenses toward donating an organ to an eligible transplant candidate.


link to the National Foundation for Transplants
www.transplants.org – Organ and bone marrow transplant patients nationwide turn to National Foundation for Transplants when they need help in paying for transplant costs not covered by insurance. NFT provides support, advocacy and financial assistance to transplant candidates and recipients nationwide.
MISCELLANEOUS
link to CarePages
www.carepages.com - Offers a free service that creates personalized home pages to help patients and their support network communicate. Create your page then give your family and friends your personal password so you can share news and receive support and encouragement.

 

© Copyright 2009 Western New York Kidney Connection